A rally for supporters of a proposed parental-rights bill in the Missouri House of Representatives, called Simon's Law, was held Tuesday night, April 19, at the Phelps County Courthouse.

A rally for supporters of a proposed parental-rights bill in the Missouri House of Representatives, called Simon's Law, was held Tuesday night, April 19, at the Phelps County Courthouse.
The rally served as a push to keep the bill, HB 1915, moving forward through the Missouri Legislature.
The legislation is named after Simon Crosier who was born in St. Louis  in 2010 with Trisomy 18, a genetic disorder that includes an extra chromosome 18. He lived three months.
As Simon's mother, Sheryl Crosier, looked through her son's medical records after his death, she discovered that the doctors had placed a "do-not-resuscitate" order without her consent.  
"I was stunned," Crosier said. "I never approved this, consented or signed off on this."
Missouri Rep. Bill E. Kidd, R-20th District, which covers the Kansas City area, said he was equally shocked after learning about Crosier's story.
Kidd was one of several speakers at the rally in support of Simon's Law.
Kidd wrote and sponsored the bill that would prohibit health care facilities and others from withholding life-sustaining procedures from a minor patient without written consent from the parent or guardian. It has been introduced earlier this legislative session but has not got out of the Health and Mental Health Policy Committee which is chaired by Rep. Dr. Keith Frederick  R-121st District, which covers Rolla, western Phelps County and eastern Pulaski County.  
"The medical community is now deciding for you that the life of your child is futile,” Kidd told the crowd. "This is a quality of life issue, an insurance issue, it's a money issue and a label issue. They are smarter than you. A do-not-resuscitate order written by the doctor without parental consent says the doctor has determined that your child should die."
Frederick, who is an orthopedic surgeon at Phelps County Regional Medical Center, was not at the rally, but he spoke with The Rolla Daily News in a phone interview Wednesday, April 20. He said that medical situations such as Trisomy 18 or 13 are difficult for all those involved.
"We did bring this up for discussion in committee this past session," Frederick explained, "and heard from some of the top neonatologists and pediatric experts in the state who begged us not to require this. Their reason is that it would put the parents in a situation where they are signing the death warrant for their child."
Frederick told the Daily News that currently, long discussions occur for medical decisions involving a minor between the medical team and the parents about the condition involved and what outcomes are options. Frederick said that he is empathetic to these parents who have to deal with these type of decisions.
Frederick said when making these types of medical decisions, the medical team takes time, the options are laid out and hopefully a consensus is reached on what to do.
"All of this is documented in their medical records," he said.  
Frederick said that a parental-consent bill such as this would cause undo stress on the medical team.
"Is it fair to the medical team and to the hospital's resources to continue to do chest compressions and provide intravenous meds and electrical shocks to the heart all day long until the parent signs a consent to stop. That puts the medical team in a very difficult ethical situation and probably one they didn't sign up for."
Kidd agreed that these are certainly difficult situations.
"Yes it's going to be hard," said Kidd, "but parenting is hard. Ultimately this is your decision and not the doctor’s."
Kidd added that if this is occurring now with newborns, what's to prevent it from happening to a teenager or an adult.
"Simon's Law is common sense," he said. "This is about common decency, but as we know, common sense isn't so common anymore."